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[personal profile] conuly
*clicks warily*

To the Editor:

Re "How About Not 'Curing' Us, Some Autistics Are Pleading" (front page, Dec. 20):

As the mother of a child who recovered from autism through intensive behavioral treatment, I respect that individual differences and the need for treatment are not mutually exclusive.

The article highlighted the school of thought that people with autism should not be treated because their autism is what makes them special.

Everyone, no matter who, should be respected and appreciated for his or her uniqueness. Parents of children with autism want most of the same things as parents of typical children. They want the best for them: to help their children get along in the world, to communicate, interact and to make friends.

Treatment is not the enemy. Treatment for autism can be seen as the equivalent of schooling for the typical child. Both can help children achieve their full potential by identifying and nurturing core strengths and individual differences.

Why shouldn't children with autism have the same opportunities to learn and grow as typical children?

Karen Siff Exkorn
Sparkill, N.Y., Dec. 20, 2004
The writer is the author of a forthcoming book about autism.


Missing the point number one!

To the Editor:

As the mother of a young autistic adult, I thank you for acknowledging the pro-autistic point of view. Understanding and acceptance of our kids is a long way down the road, but I look forward to the day they will be welcome to live in the world as autistic people.

Anne Bevington
Pacifica, Calif., Dec. 20, 2004


Getting the point! Yay!

To the Editor:

It is so exciting to see in print that maybe autism is not a plague to be stamped out. My son is not a plague or a tragedy; he's a great kid with a good sense of humor and an awesome knowledge of old movies. What really needs to be fixed is how the world looks at autism.

Jeanine Kelly
Chester, Va., Dec. 20, 2004

And another one got the point.

To the Editor:

I am 13 years old. I am autistic. My parents did an A.B.A. (Applied Behavior Analysis) program. I am glad I can talk. I can say how I feel. I've been to London. I can talk about what I want to talk about. I am interested in politics. I can talk about politics. I did three years of treatment before A.B.A. I could not talk before I had A.B.A.

Aaron B. Epelbaum
Brooklyn, Dec. 20, 2004

Hard to argue, though I think he's also missed the point.

To the Editor:

Autism, perhaps more than many other diagnoses, presents a broad range of manifestations, and one treatment (or nontreatment) does not fit all. Your article glosses over this fact and could be misinterpreted as making a case for not investigating the etiologies of autism or possible treatments (for those who need to be treated).

As a doctor who cares for many patients with autism and as the uncle of an autistic nephew, I know that the research needs to be done to help many of my patients and my nephew reach their full potential.

Gary Mirkin, M.D.
Great Neck, N.Y., Dec. 20, 2004

True enough, I suppose.

To the Editor:

As the parent of a 13-year-old son with autism and as the friend of many families of children with various types of autism, I can say the experiences cited bear little resemblance to the reality faced by most.

One of the hallmarks of autism is the lack of self-awareness, social cognition and behavioral flexibility.

The self-awareness of those representatives of the "autistic liberation movement" you interviewed is something parents and caretakers of children with autism could only wish for.

There are no treatments that change whatever the root causes of autism may be. Nor are there ways of changing the world to make it kinder to our children. What we can and must do is to use proven and humane therapies like Applied Behavior Analysis and encourage research into other treatment methods.

David Schwartz
Spring, Tex., Dec. 20, 2004


GAH!!!!!

from <lj user=asperger>

Date: 2004-12-21 09:43 pm (UTC)
From: [identity profile] quartertothree.livejournal.com
I have to agree with you; that David Schwartz guy... Wow. I wonder if it occurred to him to try and ASK his son or the children of his friends how they felt about their autism.

Re: from <lj user=asperger>

Date: 2004-12-22 12:33 am (UTC)
From: [identity profile] celticess.livejournal.com
Despite it being editoral comment take it with a grain of salt. They post what they want because it might ellicit some reaction they find productive or at least benificiary to them. I observed this when my daughter was daying and my ex dragged her through the freaking press. One reporter wasn't too bad but I've developed a rather deep dislike of the Editor of BC Womens Magazine.(I feel she misrepresented a few facts and that things were exploited for possible monitary gain... also that they didn't verify certain facts before publishing)

Re: from <lj user=asperger>

Date: 2004-12-21 11:05 pm (UTC)
From: [identity profile] wakasplat.livejournal.com
This is what I wrote to the editor in response (do they run responses to letters to the editor?):
When I was near the age of the David Schwartz's son, I wasn't considered self-aware, my institutional records labeled me low-functioning and said my developmental disorder prevented me from having a personality.

You can't measure those things in another person. Do you know what it's like to hear you're not self-aware, or an empty non-person? I do.

People like Schwartz decided things for me, telling activist autistics they were nothing like me. Now that I am able to communicate my opinions, they say I'm nothing like me either. We're only allowed to communicate when
certain parents like what we say. If we liked ABA they don't question us, but if we hated it we're "anomalies". If we can't use standard language, they assume unawareness and decide for us.

Autistic liberation isn't about denying help, it's about ethics and ending all autistic people's catch-22 of powerlessness.
I also included a link to Past, Present, and Future (http://www.autistics.org/library/time.html), which makes the same point but more nuanced because it's not limited to 150 words.

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