Date: 2007-06-09 06:50 am (UTC)
From: [identity profile] kibbles.livejournal.com
Oooh my brain. It's just all so sad. Of course the blame lies with the killer but I was wondering what kind of therapy the kids were getting. Was it something useless that made the parents despair and they weren't given enough support or was it something so heavily regimented that you'd have to be out of your mind to be able to do it without cracking up? It's an angle that probably wouldn't have come to mind if it weren't for T being out of school for a week or so -- I have to fill in the hours that school did, and I'm more aware of it.

I keep hearing horror stories from other states, and then read from parents who seem to be so uneducated on their own children, and it makes my heart pound. I don't think they are going to KILL their children but inside I go 'why why why'.

This is kind of why I want to be a family practice NP -- a pediatric sort only sees one side, my real hope is to catch families in crisis, or rather, pre-crisis.

Aren't kids with ANY disability, not just autism, more likely to be abused, killed, or in foster care? If what I remember is true, that's what I want to reverse. But it's going to take a zillion years of school. :/

I also was somewhat amused the other day that when I found out from my respite care worker that there were respite care worker openings, that I wanted to apply. Could you imagine if I spent more hours giving respite than getting? :D

Rambing because I am exhausted but a truck outside has a thing going beep beep beep and I can't sleep with it.

Oh yes, are these stories getting attention because the kids are autistic and sadly they are just one in a whole heap of abuse and death? :(

Date: 2007-06-09 07:30 am (UTC)
From: [identity profile] kibbles.livejournal.com
Since I hope you know me well enough to know I won't harm my children, or will hand them off before that (and BELIEVE ME I have said to D, 'I can't take them, please, I want to shake them/hit them, please please help') I will honestly say the child of mine most at risk of coming to physical harm at my hands is K, the totally NT child.

Or I may knock her and F's heads together.

The (officially) disabled kid is stressful but not in ways that fill me with anger and stress. I will, when he tugs on me for the millionth time, do this guitarist from the Who arm rotation thing. It's more a visual LEAVE MOMMY ALONE NOW PLEASE K THX than anything.

But yeah you are right, they won't say the mother of nondisabled kids are overwhelmed, although they very well could be. Plus chances are the mom of a nondisabled kid has LESS resouces to deal with the stress. Mom of disabled kids SHOULD have more resources but it is crazy how little information they are given, especially by doctors. It was the clinic in Iowa City that FILLED OUT PAPERS FOR ME and marked off where to sign to get the ball rolling on ALL the support services. But for the people who just go to a pediatrician or a shrink of some sort, doctors know crap about those things. "Take this to school and see if you can get an IEP" the end.

The kid was suffering is NEVER acceptable. I mean none of it is, but the overwhelmed thing I can see where people make that interpretation. Because parenting is overwhelming (for any child). If your child is TRULY suffering, you find a non fatal way to stop it. I know people don't always get the education and information and help, but at what point can a human being make that sort of judgment about suffering? Where death is an IMPROVEMENT? Especially with (classical)autism. Because really how the hell do you know? For sure?

I should put on the washer and dryer and just try to sleep. Stupid neighbors.

Date: 2007-06-09 06:50 am (UTC)
From: [identity profile] kibbles.livejournal.com
Oooh my brain. It's just all so sad. Of course the blame lies with the killer but I was wondering what kind of therapy the kids were getting. Was it something useless that made the parents despair and they weren't given enough support or was it something so heavily regimented that you'd have to be out of your mind to be able to do it without cracking up? It's an angle that probably wouldn't have come to mind if it weren't for T being out of school for a week or so -- I have to fill in the hours that school did, and I'm more aware of it.

I keep hearing horror stories from other states, and then read from parents who seem to be so uneducated on their own children, and it makes my heart pound. I don't think they are going to KILL their children but inside I go 'why why why'.

This is kind of why I want to be a family practice NP -- a pediatric sort only sees one side, my real hope is to catch families in crisis, or rather, pre-crisis.

Aren't kids with ANY disability, not just autism, more likely to be abused, killed, or in foster care? If what I remember is true, that's what I want to reverse. But it's going to take a zillion years of school. :/

I also was somewhat amused the other day that when I found out from my respite care worker that there were respite care worker openings, that I wanted to apply. Could you imagine if I spent more hours giving respite than getting? :D

Rambing because I am exhausted but a truck outside has a thing going beep beep beep and I can't sleep with it.

Oh yes, are these stories getting attention because the kids are autistic and sadly they are just one in a whole heap of abuse and death? :(

Date: 2007-06-09 07:30 am (UTC)
From: [identity profile] kibbles.livejournal.com
Since I hope you know me well enough to know I won't harm my children, or will hand them off before that (and BELIEVE ME I have said to D, 'I can't take them, please, I want to shake them/hit them, please please help') I will honestly say the child of mine most at risk of coming to physical harm at my hands is K, the totally NT child.

Or I may knock her and F's heads together.

The (officially) disabled kid is stressful but not in ways that fill me with anger and stress. I will, when he tugs on me for the millionth time, do this guitarist from the Who arm rotation thing. It's more a visual LEAVE MOMMY ALONE NOW PLEASE K THX than anything.

But yeah you are right, they won't say the mother of nondisabled kids are overwhelmed, although they very well could be. Plus chances are the mom of a nondisabled kid has LESS resouces to deal with the stress. Mom of disabled kids SHOULD have more resources but it is crazy how little information they are given, especially by doctors. It was the clinic in Iowa City that FILLED OUT PAPERS FOR ME and marked off where to sign to get the ball rolling on ALL the support services. But for the people who just go to a pediatrician or a shrink of some sort, doctors know crap about those things. "Take this to school and see if you can get an IEP" the end.

The kid was suffering is NEVER acceptable. I mean none of it is, but the overwhelmed thing I can see where people make that interpretation. Because parenting is overwhelming (for any child). If your child is TRULY suffering, you find a non fatal way to stop it. I know people don't always get the education and information and help, but at what point can a human being make that sort of judgment about suffering? Where death is an IMPROVEMENT? Especially with (classical)autism. Because really how the hell do you know? For sure?

I should put on the washer and dryer and just try to sleep. Stupid neighbors.

Profile

conuly: (Default)
conuly

January 2026

S M T W T F S
     12 3
4 5 6 78 9 10
11 12 13 14 15 1617
18 1920 21 22 23 24
25 26 27 28 29 30 31

Most Popular Tags

Style Credit

Expand Cut Tags

No cut tags
Page generated Jan. 30th, 2026 10:20 pm
Powered by Dreamwidth Studios