Something [personal profile] leora said prompted this.

Feb. 9th, 2005 09:40 pm
conuly: (Default)
[personal profile] conuly
I have problems. Seriously, I do.

But I don't ever like mentioning them, ever, because I always feel like I'm whining or exaggerating.

Take the idea of faceblindess. I don't think I'm faceblind. I don't consider myself faceblind. And yet, there's a number of incidents which only make sense if I say I'm faceblind. Most notoriously, there's the time I was about to tell a man with a cute baby "my niece has that same outfit" when I realized that it *was* my niece and brother-in-law, but trust me when I say this incident is not alone in my memory.

Or there's my hearing. I have very good hearing. My hearing is probably better than yours. I can hear the train doors close from several blocks away. But I can't be in a crowded room and follow a conversation. I never used to mention this to people, and just sat through "group work" where I either did nothing or did everything because it was easier than trying to listen to people talking. I still don't like mentioning it to people, because it's just "Well, my hearing isn't bad, exactly, but it's hard for me sometimes, but not all the time, and... um...."

Riiiiight.

Well, this has been my melodramatic post for the day. Djusk' a!
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Date: 2005-02-09 06:54 pm (UTC)
From: [identity profile] ladyshrew.livejournal.com
I know, I have both of those problems. The other thing is I *do* actually have bad vision and hearing. It's just that, sometimes, it's not *quite* as bad as it seems, because it's me just not following a conversation. But then, I can hear annoyingly high pitches and stupid humming noises in rooms, ugh.

Date: 2005-02-09 07:12 pm (UTC)
From: [identity profile] ser-kai.livejournal.com
Same here, only I do say I'm faceblind cos I am!

Ooohh... someone else that can here certain noises blocks away!

Date: 2005-02-09 07:19 pm (UTC)
From: [identity profile] azarias.livejournal.com
Huh. I do some of that. I have to deliberately concentrate on individual, physical features to be able to tell people apart -- I won't confuse, say, a tall black man with a small Asian woman, but I have a hell of a time telling who's who when presented with two blond women I both know, or similar situations. I sometimes can't pick my sister out of a crowd, and I spent my childhood running up to various women, having mistaken them for my mother.

I was terrified of loud noises as a child -- still get panic attacks from them, but I think I've gone somewhat deaf, so the problem's taken care of itself to some extent. I can hear a great many things that people miss, but I spend a lot of time going "Huh?" when people talk to me, because I often can't make out words that are being said, especially when there are other sounds around. I can hear the voices just fine, but telling what they're saying takes concentration.

I always just thought it was me being weird. Nice to know that other people do the same thing.

Now that I type that, it sounds kind of rude, like I'm happy that you have those problems. That's not what I mean. Yanno.

Date: 2005-02-09 07:22 pm (UTC)
From: [identity profile] rantinan.livejournal.com
I loose conversation threads. particularly with people i love. i get involved in realy listening to the sound of their voice, the inflection the way it makes me feel..... and completly miss what they are saying.

Date: 2005-02-09 07:32 pm (UTC)
From: [identity profile] wakasplat.livejournal.com
I follow similar route to Donna Williams.

"I'm the opposite of deaf. So I have really sensitive ears but can have trouble with processing sound."

Date: 2005-02-09 07:36 pm (UTC)
From: [identity profile] codeman38.livejournal.com
Yeah... explaining faceblindness and auditory processing difficulties is a rather difficult task, because people don't believe such things exist. Argh!

Date: 2005-02-09 07:38 pm (UTC)
From: [identity profile] stejcruetekie.livejournal.com
If you give me some of your extra hearing, we'll both solve our problems! (at least hearing wise). I know, we'll cut out your one ear and replace my deaf ear...

Date: 2005-02-09 07:39 pm (UTC)
From: [identity profile] wodhaund.livejournal.com
I don't have a problem with faceblindness, but I completely understand the thing with hearing. I have the same problem, even sometimes in one-on-one situations.

It's really frustrating to have to say "Could you please repeat that?" when my hearing itself is perfectly good. (Just the processing doesn't work? I guess.)

Date: 2005-02-09 08:16 pm (UTC)
From: [identity profile] latenightparty.livejournal.com
I've had similar issues with hearing. My hearing is quite good, but I sometimes can't understand what people are saying in a noisy environment, especially if they're talking in a low voice or whispering. Also, numerous times someone has tapped me on the shoulder and went, "You must be deaf! Because I was YELLING your name!"

And of course, when I try to explain to them about auditory processing, they don't understand and just assume I have bad hearing. >.<

Date: 2005-02-09 08:17 pm (UTC)
From: [identity profile] latenightparty.livejournal.com
Or you could do what I'm doing, and make yourself slowly go deaf with headphones. :P

Even so, I think my hearing is still pretty acute.

Date: 2005-02-09 08:23 pm (UTC)
From: [identity profile] azuresunglasses.livejournal.com
[i] either did nothing or did everything because it was easier than trying to listen to people talking.[/i]
That is what I do. I hate group work for that reason too, because I hate everyone talking at me at once. Usually I'm pretty good in social situations, though.
Luckily, my teachers know this and give me the option to work alone. I get the work done faster and with less pain to me.
It *is* always nice to know there are people out there with the same problems as you.

Date: 2005-02-09 08:51 pm (UTC)
From: [identity profile] leora.livejournal.com
These are all processing disorders. The sensory input is fine, the processing is a little shakier. Everyone is somewhere on a spectrum for how well they process different things. I'm probably just slightly faceblind, not enough for it to have been an issue before I went blind. But every now and then I completely didn't recognize someone. And I was always afraid about meeting people at airports, train stations, etc. because I was never sure whether I'd recognize the person. I also didn't make many friends throughtout most of grade school, in part because I could never tell who anyone was.

But I can consistently recognize people I deal with daily (a bit lesso now with blindness, but that is a different issue).

The auditory issues sound a lot like Central Auditory Processing Disorder, which you can learn more about at [livejournal.com profile] capd. I'm fairly sure I have that, and apparently was unconsciously using lip reading to increase my understanding. Since becoming blind, one of the hardest things was realizing I couldn't understand what people were saying nearly as well as I used to. It was really the deafness that was the more frustrating part of blindness.

But again, I only have mild CAPD. It causes a handful of problems, but not nearly as many as it can for some people.

Anyway, processing disorders aren't unusual. They're just poorly understood. And the terms aren't in the general public's awareness enough for someone to be able to just say, "I'm faceblind." and people to go, "oh, okay. I'll keep that in mind." People have enough trouble knowing how to help people with very clear disabilities like blindness, being in a wheelchair, etc. that as soon as you get to something tricky like faceblindness, fatigue, social anxiety, etc. they just become totally lost.

Ahwell... I'll keep dreaming of a world willing and able to help accomodate such things.

Date: 2005-02-09 10:41 pm (UTC)
From: [identity profile] azarias.livejournal.com
Wow.

This page here: http://pcs.mgh.harvard.edu/heal_lang_art3.htm The section labelled "What are some characteristics of processing disorders?"?

Me.

Not all of it. I did exceptionally well in school: my problems with academics came from being too good at them while being completely incompetent with any kind of social interaction. I'm high-I.Q.; the tests say "genius," albeit the low end of that scale, but see Rahaeli's recent rant on that subject for what is basically my opinion phrased more eloquently than I could ever put it. I've never had problems with reading and am a thoroughly average speller, and when I put my mind to it I have a fairly elegant writing style, too. I'm very prone to daydreams when I'm trying to listen to instructions or lectures, but I can't say how much of that is a problem with processing and how much is a problem with becoming bored and irritable being told things too slowly. I get very, very cranky when I have to learn something with people who pick up more slowly than I do, and I'm a complete arrogant ass if I don't wander off.

I had problems with fine motor control as a child and had to have several years of speech therapy to slow my speech down, unslur my words, and teach me to say sounds that I just couldn't produce without a lot of practice. (Mostly I tolerated the lessons because the instructors had some really cool word games that I could play on paper or the computer, and while I think the idea was that I'd be speaking the words aloud while I played, I really ended up just sitting there and going through them with enjoyment for the written exercises.) I'm still not very good at speaking. I have to stop frequently and sort out my syllables, and I go too fast when I'm not paying attention. I loathe and fear phones.

The problem with this is that I'm prone to diagnose myself with all kinds of whacked-out things if I see a list of symptoms and pick up some similarities to myself, so I have no way of telling if this is sounding right because it's right or if it's sounding right because it's what's on my mind at the moment.

Date: 2005-02-09 10:57 pm (UTC)
From: [identity profile] leora.livejournal.com
It is hard to say. I'd much rather have a formal diagnosis of CAPD. But I just fit it so well. I always had problems understanding speech, but my hearing always tested out as fine. I did well in school, except I got totally lost in Spanish when it became full-immersion. The teacher stopped writing the assignments on the board and just told us, and I had enough problem getting that information spoken in English.

I've always had to ask people to repeat themselves multiple times. And have the little personal rule of I have someone repeat something twice, if I still don't get it, I smile and nod. But I've gotten much better results since I've taught people to repeat what they have to say, but with more spacing between their words. I also can often sort something out, now that I specifically replay the sounds and think about how I can move the sound breaks to try to come up with alternate meanings. That and the massive increase of hearing problems when I went blind just seem to really fit a picture of CAPD.

I do know the dangers of self-diagnosis... I majored in psychology and they give you really big warnings about it. It's very easy to start to think you have every problem in the book. But then, you look at something and lots of people look at it and go, wow that'd be weird to have, and you go, wow, that's been my whole life... and it just feels like a good diagnosis.

Date: 2005-02-10 05:55 am (UTC)
innerbrat: (Default)
From: [personal profile] innerbrat
I totally have the hearing thing.

I find it really difficult to filter noises. Like, in a crowded room, I cannot make the conversation I want to listen to louder than the environment, and it all juts becomes white noise.

This can result in either: a) me becoming depressed and withdrawn and sulky or b) me becoming hyperactive and shouty in an attempt to drown out the noise. It depends on which way I'm swinging at the moment.

And I hate it. It's starting to interfere with my life.

Date: 2005-02-10 08:13 am (UTC)
From: [identity profile] wispfox.livejournal.com
I'm almost certainly mildly face blind, although not as strongly as you are based on the example you gave. I find it easier to just explain to people that certain things (like not recognizing them out of context) are likely to happen, and that it's not personal.

My hearing in crowds _sucks_. I tend to try to sit against a wall or something which will similarly limit the directions from which I will be receiving auditory input, or I can't follow conversations. Again, I think this is less bad than yours, based on the above example. And I think my problem is simply that I have trouble with processing spoken words, and it's magnified the more there is to process and/or be distracted by. It's why I tend to want things to be written down if I need to remember them for some reason.

I don't think of mentioning these kinds of things as being melodramatic. Rather, I think of them as letting people know how I work so that they have a better chance of interacting with me in a mutually pleasant manner. It's fine if they forget, as I tend to forget things all the time, but I like to give people useful information if I think it'll help them. These are the kinds of things that I think of as useful information, if they are likely to apply ever. *shrug*

Date: 2005-02-10 08:16 am (UTC)
From: [identity profile] wispfox.livejournal.com
I note that, for me, I suspect that it's a combination of trouble separating out different auditory input sources, and having to put quite a lot more effort than is apparently normal in order to _process_ auditory input sources.

(there are also certain visual input sources that I tend to not bother trying to process. Like black and white comics. Or watching any TV/movie in any position other than sitting straight up. I appear to have a severe lack of ability to easily process things when I'm looking at them from the 'wrong' angle, and my ability gets worse the longer I am trying)

Date: 2005-02-10 08:17 am (UTC)
From: [identity profile] wispfox.livejournal.com
Huh.

Interestingly, anyone I've felt actually had reason to know about these kinds of things relating to me has sometimes had trouble understanding, but is willing to accept that it's the case and do what they can to work around it. But then, I've got all sorts of minor neurologic abnormalities, so that might be why.

Date: 2005-02-10 08:45 am (UTC)
From: [identity profile] codeman38.livejournal.com
I'm still not very good at speaking. I have to stop frequently and sort out my syllables, and I go too fast when I'm not paying attention. I loathe and fear phones.

Yay, another telephonophobe. :) I'm surprised there are so many of us out there; I ought to create an LJ community for telephonophobia...

Date: 2005-02-10 08:48 am (UTC)
From: [identity profile] codeman38.livejournal.com
This can result in either: a) me becoming depressed and withdrawn and sulky or b) me becoming hyperactive and shouty in an attempt to drown out the noise. It depends on which way I'm swinging at the moment.

Yes! I'm normally rather soft-spoken, but sometimes in crowded places-- well, when I don't go into an utter meltdown from sensory overload-- I end up yelling and don't even notice that I'm doing it. It's just that I can barely hear myself thinking, much less speaking!

Date: 2005-02-10 10:00 am (UTC)
From: [identity profile] bridgetester.livejournal.com
I think that's a case of recognition versus cognitive understanding.

You can recognize that Thingy exists and that Foo and Bar are workarounds without actually understanding how Thingy works.

Date: 2005-02-10 10:02 am (UTC)
From: [identity profile] bridgetester.livejournal.com
Huh.

How does color improve your comprehension of comics?

So some of the small angle LCD monitors would really cause problems?

Those seem to go along with direction sense... and just the ability to visualize. I forget, can you draw well?

Date: 2005-02-10 10:04 am (UTC)
From: [identity profile] bridgetester.livejournal.com
Interesting... What sorts of physical differences do they have?
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