A post by AutismDiva

[conuly]

Don't ask for a summation, I'm too tired.

It's full of videos of overly cute kids. In the comments she linked to this video on "autism documentaries", which is interesting to watch, though I suggest you don't read the comments unless you want to bang your head against a wall. It's not what they say so much as how they say it - over, and over, and over again.

Comments

[kibbles.livejournal.com]

Ahh I wish I knew earlier, you know why? Not for hours more of therapy but then (if I knew earlier with THESE people) I would have known about aaaaalllllll the sensory stuff and I could have happily heaped it on him and he would have been a blissful kid instead of a crying, pacing one. Ooooh I swear the noises he makes when swinging or whatever are practically orgasmic, and if I realized that he liked the feeling of jumping so much, I would have had a trampoline sooner instead of my little guy covered in bruises from jumping off stuff all the time. (And lets not go into how STUPID I feel for not bringing PECS into the house sooner. Doh!)


Of course they say it over and over and over again, isn't that a fundamental part of ABA?

Do you remember me writing about T's IEP? Even though he doesn't get ABA, school can be repetitive, for ANYONE. And the, um, resource specialist? I forget her title had it put down that asking T for pointless stuff is pointless, to no longer ask him to do very abstract work like 'get me a red block' but other stuff. Get a pencil and let's right, and even get the red one and let's right. The kid can get his clothes when asked, and the right stuff, fetch me things, turn lights on, all sorts of things that you ask your kid to do (I love being a mom! HA!) but he hates doing pointless stuff. So since everyone agreed that yes he understands things, then continue with directions but not so abstract and dull. (A thing that is checked in child development, as you know having kids around you, is the number of steps a kid can follow, we're trying to consistently make it two, and hopefully three.)

T has to live in the real world. No amount of getting a red frickin block is going to help. Going over to his respite person's house for mac and cheese? That helps. Especially if he uses a spoon and doesn't throw it.

This quote in the last comment:
"What could be more difficult than interpreting the thoughts of an autistic child???"

Is such BULL. The reason we waited so long to bring PECS in the house is we had this completely silent 'on the same wavelength' thing going on with T. Really, if you pay attention to your kid, you can get somewhere. ALTHOUGH I will admit we're having trouble with F, but we just have to figure out a way in, or something. Or he has to figure a way to communicate better which is why he gets speech but whatever. Still I know the basics of what goes on in his head. K is NT and I would like to know what the heck goes on in her head because it's pretty troublesome, and D has told me outright that what goes on in his is pretty colors and sounds. Seriously though, you don't know what goes on in your kids head if YOU DON'T TRY. Figuring out a kid is work, period. It can be done, you aren't always right, but you just try. That just bugged me.

(Oh and did you ever talk to ANY adult who will tell you a story of when something they did as a kid was totally misinterpreted? Dan once took the hose out when he was barely 4 and made a big puddle. Apparently he was trying to make a river. I'm sure to his mom he was just making a mess and being difficult. Nope. He wanted his own river.

[kibbles.livejournal.com]

Ahh I wish I knew earlier, you know why? Not for hours more of therapy but then (if I knew earlier with THESE people) I would have known about aaaaalllllll the sensory stuff and I could have happily heaped it on him and he would have been a blissful kid instead of a crying, pacing one. Ooooh I swear the noises he makes when swinging or whatever are practically orgasmic, and if I realized that he liked the feeling of jumping so much, I would have had a trampoline sooner instead of my little guy covered in bruises from jumping off stuff all the time. (And lets not go into how STUPID I feel for not bringing PECS into the house sooner. Doh!)


Of course they say it over and over and over again, isn't that a fundamental part of ABA?

Do you remember me writing about T's IEP? Even though he doesn't get ABA, school can be repetitive, for ANYONE. And the, um, resource specialist? I forget her title had it put down that asking T for pointless stuff is pointless, to no longer ask him to do very abstract work like 'get me a red block' but other stuff. Get a pencil and let's right, and even get the red one and let's right. The kid can get his clothes when asked, and the right stuff, fetch me things, turn lights on, all sorts of things that you ask your kid to do (I love being a mom! HA!) but he hates doing pointless stuff. So since everyone agreed that yes he understands things, then continue with directions but not so abstract and dull. (A thing that is checked in child development, as you know having kids around you, is the number of steps a kid can follow, we're trying to consistently make it two, and hopefully three.)

T has to live in the real world. No amount of getting a red frickin block is going to help. Going over to his respite person's house for mac and cheese? That helps. Especially if he uses a spoon and doesn't throw it.

This quote in the last comment:
"What could be more difficult than interpreting the thoughts of an autistic child???"

Is such BULL. The reason we waited so long to bring PECS in the house is we had this completely silent 'on the same wavelength' thing going on with T. Really, if you pay attention to your kid, you can get somewhere. ALTHOUGH I will admit we're having trouble with F, but we just have to figure out a way in, or something. Or he has to figure a way to communicate better which is why he gets speech but whatever. Still I know the basics of what goes on in his head. K is NT and I would like to know what the heck goes on in her head because it's pretty troublesome, and D has told me outright that what goes on in his is pretty colors and sounds. Seriously though, you don't know what goes on in your kids head if YOU DON'T TRY. Figuring out a kid is work, period. It can be done, you aren't always right, but you just try. That just bugged me.

(Oh and did you ever talk to ANY adult who will tell you a story of when something they did as a kid was totally misinterpreted? Dan once took the hose out when he was barely 4 and made a big puddle. Apparently he was trying to make a river. I'm sure to his mom he was just making a mess and being difficult. Nope. He wanted his own river.