Here is a neat summation of the various issues around this, if you haven't thought of this before.
Here's an article on the death. I find it annoying that they describe her, at six, as being unable to care for herself because she had Rett's syndrome. I know what they mean, but meanwhile - she was kindergarten-aged! Barely the age typical children start real school. At that age, you're not supposed to be able to care for yourself, which is why children are expected to have guardians. They might've found a better, less silly way of phrasing it.
Here's an article on the death. I find it annoying that they describe her, at six, as being unable to care for herself because she had Rett's syndrome. I know what they mean, but meanwhile - she was kindergarten-aged! Barely the age typical children start real school. At that age, you're not supposed to be able to care for yourself, which is why children are expected to have guardians. They might've found a better, less silly way of phrasing it.