This is an interesting editorial...
May. 30th, 2006 08:55 am![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
conuly
About autism, movies, and fear.
'Handiphobia'
Who's Afraid of the Rain Man?
by Chuck Colson
I recently told you about Jason McElwain. He's the autistic high-schooler from Greece, New York, whose feats on the basketball court, in President Bush's words, "captivated our country."
Not surprisingly, McElwain's story is being turned into a movie. What is surprising is that this is not the only movie being made about autistic people.
There are at least three other films scheduled for release or in production about autistic people and their families. The most highly anticipated of them is probably Daniel Isn't Talking, starring Julia Roberts. Based on the novel by Marti Leimbach, it's the story of a woman whose seemingly perfect world is turned upside down when her three-year-old son is diagnosed as autistic.
Leimbach, whose nine-year-old son, Nicholas, is autistic, says that stories about autistic people "[dramatize] the fact that none of us have perfect children." In her estimation, this is why the stories have broad appeal.
As the grandfather of an autistic boy, I'm gladdened by the positive attention being given to people like my grandson Max, who has some amazing qualities. And one of BreakPoint's writers and a valued colleague is a single dad raising an autistic boy. This subject is close to home. But, as a Christian, I cannot help but notice that all of this attention is coming at a time when it's increasingly dangerous to be a handicapped child. They are squarely in the gunsights of those who are conducting what I call a "war on the weak," which is what this present series is about.
The best-known advocate of this war is Princeton Professor Peter Singer. He has justified the killing of a handicapped child if it "leads to the birth of another child with better prospects of a happy life." In this case, "the total quantity of happiness will be greater . . ."
It is tempting to dismiss Singer as a crank, that is, until you recall that, just last fall, the Netherlands legalized the killing of terminally ill children—this despite ample warning that the practice is not and will not be confined to the terminally ill. All Dutch children with birth defects are now at risk.
Outside the Netherlands, the threat is subtler, but no less real. Italian neonatologist Carlo Bellieni has coined the term handiphobia to describe the fear of having a disabled child. According to Bellieni, we in the West see "the fetus, as a means and not as the end they truly are." Thus, "the child is no longer loved unconditionally and respected as a human person."
Instead, we use prenatal testing to detect any identifiable defects in the unborn child. Those with such defects, like Down syndrome, are then aborted. As Bellieni puts it, "[A]s with all phobias, [the object of our fear] must be made to disappear."
Well, that's putting it starkly, but it is true: If a prenatal test for autism were ever developed, it would not be long before autistic people would also be "made to disappear." While Leimbach is right about no one's child being "perfect," Bellieni is also right about how much "imperfection" we're not prepared to accept.
That's why I hope that stories like young Jason McElwain's do more than make us feel good. I hope they also help us to understand the evil that comes from giving in to our fears.
~~~~~~~~~~~~
Also, an article from![[livejournal.com profile]](https://www.dreamwidth.org/img/external/lj-userinfo.gif)
thornleaf about chelation.
Have at it, guys.
Heavy metals may be implicated in autism
URINE samples from hundreds of French children have yielded evidence for a link between autism and exposure to heavy metals. If validated, the findings might mean some cases of autism could be treated with drugs that purge the body of heavy metals.
Samples from children with autism contained abnormally high levels of a family of proteins called porphyrins, which are precursors in the production of haem, the oxygen-carrying component in haemoglobin. Heavy metals block haem production, causing porphyrins to accumulate in urine. Concentrations of one molecule, coproporphyrin, were 2.6 times as high in urine from children with autism as in controls.
Autism is thought to have a number of unknown genetic and environmental causes. Richard Lathe of Pieta Research in Edinburgh, UK, says he has found one of these factors. "It's highly likely that heavy metals are responsible for childhood autistic disorder in a majority of cases," he claims. The study will appear in Toxicology and Applied Pharmacology.
Lathe says these porphyrin metabolites bind to receptors in the brain and have been linked with epilepsy and autism.
The researchers restored porphyrin concentrations to normal in 12 children by treating them with "chelation" drugs that mop up heavy metals and are then excreted. It is not yet known whether the children's symptoms have eased, but Lathe cites anecdotal reports suggesting the drugs might do some good.
'Handiphobia'
Who's Afraid of the Rain Man?
by Chuck Colson
I recently told you about Jason McElwain. He's the autistic high-schooler from Greece, New York, whose feats on the basketball court, in President Bush's words, "captivated our country."
Not surprisingly, McElwain's story is being turned into a movie. What is surprising is that this is not the only movie being made about autistic people.
There are at least three other films scheduled for release or in production about autistic people and their families. The most highly anticipated of them is probably Daniel Isn't Talking, starring Julia Roberts. Based on the novel by Marti Leimbach, it's the story of a woman whose seemingly perfect world is turned upside down when her three-year-old son is diagnosed as autistic.
Leimbach, whose nine-year-old son, Nicholas, is autistic, says that stories about autistic people "[dramatize] the fact that none of us have perfect children." In her estimation, this is why the stories have broad appeal.
As the grandfather of an autistic boy, I'm gladdened by the positive attention being given to people like my grandson Max, who has some amazing qualities. And one of BreakPoint's writers and a valued colleague is a single dad raising an autistic boy. This subject is close to home. But, as a Christian, I cannot help but notice that all of this attention is coming at a time when it's increasingly dangerous to be a handicapped child. They are squarely in the gunsights of those who are conducting what I call a "war on the weak," which is what this present series is about.
The best-known advocate of this war is Princeton Professor Peter Singer. He has justified the killing of a handicapped child if it "leads to the birth of another child with better prospects of a happy life." In this case, "the total quantity of happiness will be greater . . ."
It is tempting to dismiss Singer as a crank, that is, until you recall that, just last fall, the Netherlands legalized the killing of terminally ill children—this despite ample warning that the practice is not and will not be confined to the terminally ill. All Dutch children with birth defects are now at risk.
Outside the Netherlands, the threat is subtler, but no less real. Italian neonatologist Carlo Bellieni has coined the term handiphobia to describe the fear of having a disabled child. According to Bellieni, we in the West see "the fetus, as a means and not as the end they truly are." Thus, "the child is no longer loved unconditionally and respected as a human person."
Instead, we use prenatal testing to detect any identifiable defects in the unborn child. Those with such defects, like Down syndrome, are then aborted. As Bellieni puts it, "[A]s with all phobias, [the object of our fear] must be made to disappear."
Well, that's putting it starkly, but it is true: If a prenatal test for autism were ever developed, it would not be long before autistic people would also be "made to disappear." While Leimbach is right about no one's child being "perfect," Bellieni is also right about how much "imperfection" we're not prepared to accept.
That's why I hope that stories like young Jason McElwain's do more than make us feel good. I hope they also help us to understand the evil that comes from giving in to our fears.
Also, an article from
thornleaf about chelation.Have at it, guys.
Heavy metals may be implicated in autism
URINE samples from hundreds of French children have yielded evidence for a link between autism and exposure to heavy metals. If validated, the findings might mean some cases of autism could be treated with drugs that purge the body of heavy metals.
Samples from children with autism contained abnormally high levels of a family of proteins called porphyrins, which are precursors in the production of haem, the oxygen-carrying component in haemoglobin. Heavy metals block haem production, causing porphyrins to accumulate in urine. Concentrations of one molecule, coproporphyrin, were 2.6 times as high in urine from children with autism as in controls.
Autism is thought to have a number of unknown genetic and environmental causes. Richard Lathe of Pieta Research in Edinburgh, UK, says he has found one of these factors. "It's highly likely that heavy metals are responsible for childhood autistic disorder in a majority of cases," he claims. The study will appear in Toxicology and Applied Pharmacology.
Lathe says these porphyrin metabolites bind to receptors in the brain and have been linked with epilepsy and autism.
The researchers restored porphyrin concentrations to normal in 12 children by treating them with "chelation" drugs that mop up heavy metals and are then excreted. It is not yet known whether the children's symptoms have eased, but Lathe cites anecdotal reports suggesting the drugs might do some good.
