conuly: (Default)
conuly ([personal profile] conuly) wrote2005-01-10 05:40 am

Thanks to... oh, I forget.

Article on the Autistic Liberation Front.

Which I always thought was a non-real organization....

1. The movement is causing anxiety, however, among British parents concerned by their children's unpredictable, often aggressive behaviour. They believe that intensive behavioural therapy is the best way to ensure that children with autism can make a contribution to society and lead lives that are as fulfilling as possible. In recent years, there have been an increasing number of attempts to use dramatic medical interventions for people with autism.

One such treatment involves injecting them with secretin, a hormone obtained from pigs' intestines. When the treatment first became available in the late 1990s, scientists believed that they had discovered a cure but doctors now caution against the use of secretin, which researchers at the University of North Carolina have concluded "may be no more effective than salt water".


2. Mrs Moore disagreed, however, with the front's suggestion that autistic people should be left to their own devices. "There are therapies and interventions that can help to alleviate symptoms that are distressing to autistic people and their families or carers."

3. He added, however, that there were "a hell of a lot of people out there who do have serious types of autism and really do need help".

4. Many British parents are unconvinced. Faced with the difficulties of raising autistic children, such as their shifting moods and sometimes violent outbursts, they say the idea of "freedom" for all autistic people is "pie-in-the-sky".

5. Samantha Hilton, from Crowborough, East Sussex, who has three autistic sons, aged five, seven and 11, said that it was absurd to say that all autistic people should be left alone. "It all depends on the level of autism," she said. "The people who organise demonstrations and such like must be very high-functioning autistics and so could probably cope by themselves. But their autism is making them insensitive to the many autistics who are not so high-functioning and would find it very difficult to be 'liberated' in this way."

6. Mrs Hilton said it was inaccurate to compare freedom for autistic people with gay liberation. "Being gay does not stop you having a job and getting on with daily life. Autistic people don't have a choice."

I'll add commentary later, if I feel like it. Really, it's nothing you haven't heard/said before, so you can just kinda fill in the blanks.

[identity profile] davidkevin.livejournal.com 2005-01-10 06:10 am (UTC)(link)

That isn't autism, that's insanity.

[identity profile] wakasplat.livejournal.com 2005-01-10 09:26 am (UTC)(link)
It is a non-real organization. Whoever did the reporting was really, really sloppy in more ways than one.

[identity profile] staircase-wit.livejournal.com 2005-01-10 12:18 pm (UTC)(link)
The fact that a non-real organization is organizing rallies makes me really want to sit down with Samantha "three's the charm" Hilton and explain to her Some Important Things.

[identity profile] wakasplat.livejournal.com 2005-01-10 03:27 pm (UTC)(link)
Oh yes, and that rally they talk about is actually something organized by parents. One autistic guy went out there and sat there with a sign and got yelled at and cussed out by a bunch of the parents. I suspect they lifted that straight from the NY Times article without bothering to read carefully. (I'm really, really disturbed when I'm technically the one with the reading-comprehension impairment and I seem to be able to read better than professional reporters.)

[identity profile] staircase-wit.livejournal.com 2005-01-10 05:12 pm (UTC)(link)
When and if I find Samantha Hilton, I'll let her know that fact as well. It *might* change her story. I can easily imagine an individual having the skills to turn the logos on autistics.org into full signs and attenting a counter-protest, but lacking certain other important life-skills. (I can also imagine someone organizing a rally and lacking those skills, but I have a strong imagination).

I know it's an accident, but I still admire that one guy who got shouted at by angry parents for his uncanny ability to turn their rally into his event. It's sort of like Michael Moore crashing the Republican Convention, getting kicked out within the first five minutes, and the UK press reporting it as a meeting of left-wing political radicals under the direction of Michael Moore. Reminds me a bit of the game Othello.

[identity profile] celticess.livejournal.com 2005-01-10 03:21 pm (UTC)(link)
I wondered if they actually talked to Laura or you. I wrote the editor and said something to that effect. I also pointed out that none of us say leave your kids to run wild. As well as mentioned some parents contempt for how they perceive any functional autistics yet they claim to want their kids to be like us. I pointed out the irony there. I also pointed out people belong to autistics.org from all over the world not just US and UK. I always thought Laura did up those buttons as a spoof to poke fun at NT's and also as a statment of who autistics are.

[identity profile] wakasplat.livejournal.com 2005-01-10 03:30 pm (UTC)(link)
They never talked to us, no. (Or to the other person who runs autistics.org for that matter.) I think they just skimmed the front page — badly skimmed it — and then believed what everyone else said about us.

[identity profile] celticess.livejournal.com 2005-01-10 03:43 pm (UTC)(link)
Thats what I figured. :( They figured no doubt people would presumed they actually had talked to all of you or to people from neurodiversity. Thats why I got mad and hunted down their contact info. Their page isn't very logical that way as there are 3 different spots of contact info and only one was applicable.(you can find it under site map and it's the weekly telegraph editor one)

[identity profile] lakidaa.livejournal.com 2005-01-10 09:50 am (UTC)(link)
On number five: DUDE. why did you have the third one, much less the second one?

If you think it's unfair to the kid or too hard to raise an autisic kid, then don't ave any more.

I don't like the person in number five.

[identity profile] staircase-wit.livejournal.com 2005-01-10 12:14 pm (UTC)(link)
But it's not genetic, no no, it's the EVIL MERCURY CONSPIRACY. Just look at the MONEY the EVIL DRUG COMPANIES would lose if the politicians they keep in their purses were to tell the TROOF about it! What do you mean I should be looking at the MONEY being made by the EVIL QUACK-CURE PUSHERS? What do you mean the Conspiracy of Silent Politicians to Hide the TROOF sounds like nutter UFO-abductee talk? You don't know anything anyway, you're all SCHIZOPHRENIC, yeah, that's the ticket.

(Ouch... channeling the spirit of Tanya Lysanko hurts my head).

[identity profile] lakidaa.livejournal.com 2005-01-10 03:15 pm (UTC)(link)
DUDE. OH SWEET AOSKAR DEAD IN THE ASTRAL.

*channels self, because she is not witty*

The best part is when I explain why more people are diagnosed with these things earlier (ZOMG better tests!) and they go a 'bwah? o_O' on me.

[identity profile] rantinan.livejournal.com 2005-01-10 03:17 pm (UTC)(link)
OH NOOOOES tehy put flouride in teh water to OMG OMG WTFLOL!!11BBQ!~

(mispellings deliberate there)


[identity profile] celticess.livejournal.com 2005-01-10 03:23 pm (UTC)(link)
You may of got the link from me. I had posted it after DaNutBall pasted it to me in IM. I also wrote the editor of the paper. I've not heard back yet. But I pointed out that there are people involved in autistics.org from all over the place. That we haven't said let your kids run wild. I also asked if they bothered to talk to the people at the sites they linked to.

[identity profile] wakasplat.livejournal.com 2005-01-10 03:28 pm (UTC)(link)
I think I'm going on hundreds, or thousands, or something, and I don't know if I've cracked yet or not.

[identity profile] celticess.livejournal.com 2005-01-10 03:41 pm (UTC)(link)
I think the parents and some professionals get locked in tunnel vision. For the kids with overlapping stuff it's exhausting when they are small sometimes. By the way I pointed out to them that what some parents are complaining about aren't exclusive to autistic kids. And they don't treat non autistic kids with those same issues the same as they do autistics. I also mentioned the stats they have are people with autism but it doesn't state what other stuff they have. That people with complex cases may have a harder time. That personality and determination plays a role. As well that alot of things include autism as part of them.

But I've found you can talk til your blue in the face as the saying goes with some. With some press they want the sensational angle not the truth.

[identity profile] davidkevin.livejournal.com 2005-01-10 06:10 am (UTC)(link)

That isn't autism, that's insanity.

[identity profile] wakasplat.livejournal.com 2005-01-10 09:26 am (UTC)(link)
It is a non-real organization. Whoever did the reporting was really, really sloppy in more ways than one.

[identity profile] staircase-wit.livejournal.com 2005-01-10 12:18 pm (UTC)(link)
The fact that a non-real organization is organizing rallies makes me really want to sit down with Samantha "three's the charm" Hilton and explain to her Some Important Things.

[identity profile] wakasplat.livejournal.com 2005-01-10 03:27 pm (UTC)(link)
Oh yes, and that rally they talk about is actually something organized by parents. One autistic guy went out there and sat there with a sign and got yelled at and cussed out by a bunch of the parents. I suspect they lifted that straight from the NY Times article without bothering to read carefully. (I'm really, really disturbed when I'm technically the one with the reading-comprehension impairment and I seem to be able to read better than professional reporters.)

[identity profile] staircase-wit.livejournal.com 2005-01-10 05:12 pm (UTC)(link)
When and if I find Samantha Hilton, I'll let her know that fact as well. It *might* change her story. I can easily imagine an individual having the skills to turn the logos on autistics.org into full signs and attenting a counter-protest, but lacking certain other important life-skills. (I can also imagine someone organizing a rally and lacking those skills, but I have a strong imagination).

I know it's an accident, but I still admire that one guy who got shouted at by angry parents for his uncanny ability to turn their rally into his event. It's sort of like Michael Moore crashing the Republican Convention, getting kicked out within the first five minutes, and the UK press reporting it as a meeting of left-wing political radicals under the direction of Michael Moore. Reminds me a bit of the game Othello.

[identity profile] celticess.livejournal.com 2005-01-10 03:21 pm (UTC)(link)
I wondered if they actually talked to Laura or you. I wrote the editor and said something to that effect. I also pointed out that none of us say leave your kids to run wild. As well as mentioned some parents contempt for how they perceive any functional autistics yet they claim to want their kids to be like us. I pointed out the irony there. I also pointed out people belong to autistics.org from all over the world not just US and UK. I always thought Laura did up those buttons as a spoof to poke fun at NT's and also as a statment of who autistics are.

[identity profile] wakasplat.livejournal.com 2005-01-10 03:30 pm (UTC)(link)
They never talked to us, no. (Or to the other person who runs autistics.org for that matter.) I think they just skimmed the front page — badly skimmed it — and then believed what everyone else said about us.

[identity profile] celticess.livejournal.com 2005-01-10 03:43 pm (UTC)(link)
Thats what I figured. :( They figured no doubt people would presumed they actually had talked to all of you or to people from neurodiversity. Thats why I got mad and hunted down their contact info. Their page isn't very logical that way as there are 3 different spots of contact info and only one was applicable.(you can find it under site map and it's the weekly telegraph editor one)

[identity profile] lakidaa.livejournal.com 2005-01-10 09:50 am (UTC)(link)
On number five: DUDE. why did you have the third one, much less the second one?

If you think it's unfair to the kid or too hard to raise an autisic kid, then don't ave any more.

I don't like the person in number five.

[identity profile] staircase-wit.livejournal.com 2005-01-10 12:14 pm (UTC)(link)
But it's not genetic, no no, it's the EVIL MERCURY CONSPIRACY. Just look at the MONEY the EVIL DRUG COMPANIES would lose if the politicians they keep in their purses were to tell the TROOF about it! What do you mean I should be looking at the MONEY being made by the EVIL QUACK-CURE PUSHERS? What do you mean the Conspiracy of Silent Politicians to Hide the TROOF sounds like nutter UFO-abductee talk? You don't know anything anyway, you're all SCHIZOPHRENIC, yeah, that's the ticket.

(Ouch... channeling the spirit of Tanya Lysanko hurts my head).

[identity profile] lakidaa.livejournal.com 2005-01-10 03:15 pm (UTC)(link)
DUDE. OH SWEET AOSKAR DEAD IN THE ASTRAL.

*channels self, because she is not witty*

The best part is when I explain why more people are diagnosed with these things earlier (ZOMG better tests!) and they go a 'bwah? o_O' on me.

[identity profile] rantinan.livejournal.com 2005-01-10 03:17 pm (UTC)(link)
OH NOOOOES tehy put flouride in teh water to OMG OMG WTFLOL!!11BBQ!~

(mispellings deliberate there)


[identity profile] celticess.livejournal.com 2005-01-10 03:23 pm (UTC)(link)
You may of got the link from me. I had posted it after DaNutBall pasted it to me in IM. I also wrote the editor of the paper. I've not heard back yet. But I pointed out that there are people involved in autistics.org from all over the place. That we haven't said let your kids run wild. I also asked if they bothered to talk to the people at the sites they linked to.

[identity profile] wakasplat.livejournal.com 2005-01-10 03:28 pm (UTC)(link)
I think I'm going on hundreds, or thousands, or something, and I don't know if I've cracked yet or not.

[identity profile] celticess.livejournal.com 2005-01-10 03:41 pm (UTC)(link)
I think the parents and some professionals get locked in tunnel vision. For the kids with overlapping stuff it's exhausting when they are small sometimes. By the way I pointed out to them that what some parents are complaining about aren't exclusive to autistic kids. And they don't treat non autistic kids with those same issues the same as they do autistics. I also mentioned the stats they have are people with autism but it doesn't state what other stuff they have. That people with complex cases may have a harder time. That personality and determination plays a role. As well that alot of things include autism as part of them.

But I've found you can talk til your blue in the face as the saying goes with some. With some press they want the sensational angle not the truth.