conuly: (Default)
PSA: Your Default Narrative Settings Are Not Apolitical

http://fozmeadows.wordpress.com/2012/12/08/psa-your-default-narrative-settings-are-not-apolitical/


An Asperger's Guide to Neurotypicals

http://feng-shui-house.dreamwidth.org/722472.html


And a DW friending meme. I've been making a concerted effort to read my reading page there lately, that's an improvement. You know how slow I can be about change.

http://kouredios.dreamwidth.org/226094.html


As a bonus, I also have this Cracked.com link, 6 Ridiculous Lies You Believe About The Founding Of This Country.

http://www.cracked.com/article_19864_6-ridiculous-lies-you-believe-about-founding-america.html
conuly: (Default)
Now, in the comments there are many people asserting that "of course" most autistics are "low-functioning". They say this, but they never once attempt to prove it. They must think we're too stupid to notice.

Quite aside from the never-ending discussion on how to define those terms and whether or not they're even valid, there really is no proof of that claim. When people say that, they're making it up. They really are. Don't buy into claims like this until you check it out yourself. As I get older, I find that the more often something is repeated, the less likely it is to be true, and this little gem is no exception.

http://www.nytimes.com/2012/12/02/magazine/the-autism-advantage.html

Read more... )
conuly: (Default)
Some autistic brains really are wired differently

What child prodigies and autistic people have in common

This latter is not all that well written, I think. Of course, I'm inclined to find the "all aspies are brilliant!!!" meme truly irritating, so "all brilliant people are autistic!!!" isn't much better.

Two of the top-level comments, so far, are the sort that ignore everything said in the article and only go nattering on and on about person-first language. One of them, upon being corrected, still goes "Oh, but, you know, not all people with autism will ever be able to talk!" And if they did, they'd automatically agree with her? The arrogance there is astounding, and far more annoying than the original "person first language totally rocks!!!" comments.

I'm thinking I'd be far less annoyed by the whole concept if the people insistent on it would ever, ever say something of content instead of their vapid, sanctimonious little comments.
conuly: (Default)

For decades, the Judge Rotenberg Center in Canton, Massachusetts has been torturing and abusing people with disabilities in the name of treatment.
Residents are subject to electric shocks, food deprivation, prolonged restraint and seclusion, and forced witness of these same tactics used against other residents.

This video of Andre McCollins, then-eighteen, who has behavioral and mental health issues, has been sealed by the courts for the last eight years. Yesterday, it played in open court during his trial against the Judge Rotenberg Center.


I haven't watched the video in question. I've heard enough about the JRC that I felt that I didn't need to do so. I would like to keep my food down today. So I'm just going to assume it is triggering and move from there.
conuly: (brain)
The Autism Wars

Read more... )
conuly: (brain)
Scientists have linked rare gene mutations to a heightened risk of autism. But only for SOME individuals.

The comments, of course, are full of people going "VACCINES!" so really, when it comes to eugenics, we've still got nothing to worry about.

Read more... )

New data show autistics' superiority at some cognitive tasks

The comments THERE are absolutely a mess, or they were when I checked them.

Autism Awareness is Not Enough: Here’s How to Change the World

With autism, no longer invisible
conuly: (Default)
We've been having spotty internet lately, and have finally tracked down the problem: My router, which was cheap when I bought it, is eight years obsolete. I need to get a new one. Well, they can't possibly have gone up in price, so it won't break the bank, I don't think.

Gave away a kitten today. Apparently, this was Evangeline's favorite kitten. Tough for her. I didn't say it to her face, but I'm sure he'll be happier in a home with three doting grown-up people who are at home all day than in a home where his needier siblings hog most of the attention and the only one who dotes is six years old and still thinks he likes being hugged. (No, I don't let her squeeze kittens around the middle, even though she wants to.)

Anyway, on to those links!

Israelis Facing a Seismic Rift Over Role of Women
There are pictures


Read more... )

New Definition of Autism May Exclude Many, Study Suggests


Read more... )

Here's an article about segregated housing for vegetarians only in Bombay

And one on Bastøy, a very free prison in Norway

State notes alarming spike in starvation of adopted children. They list the signs of potential starvation in a child, but of course it's worth noting that with adopted children, many of these psychological signs (like hoarding food or bolting it down quickly) could be a sign that they went hungry BEFORE being adopted.

Report: Medical Marijuana Laws Reduced Traffic Fatalities

Texas doctors lead open-notes movement

And finally, BSG (remake) as an 8-bit RPG!
conuly: (Default)
http://juststimming.wordpress.com/2011/10/05/quiet-hands/

I never had to deal with that from teachers nor, for the most part, family. The only thing similar is my mother's complaints that when I spun a mardi gras necklace on my arm, I made her dizzy - but even then, she didn't care so long as she didn't see me.

My mother's comment once, when I complained about the judgment inherent in saying autistic children don't "play properly" with toys but may "just" line them up was, before I could get to the point, a vehement interruption of "But that IS playing!" That's certainly how I played as a child much of the time.

Sometimes, I love my family very, very much.
conuly: (werewolf theothernight)
When I leave a long, thoughtful review on how a certain book sends the message that it's okay for autistic people to kill themselves because, after all, it's not like we fit in, there are a number of correct responses to that.

Not a single one of those responses is "Please use person first language!" Not even as part of another response.

Because seriously? Fuck that shit right there. This is exactly the problem! If you can't remember which people are really people because we don't all talk funny? That's all on you. That's not my concern. Maybe if you didn't think we all had to talk funny first you'd be more on top of having people love and accept their autistic family members.

I am done. I am no longer even going to reply to people who think it's oh-so-crucial to call me out on my use of the word "autistic" when that word does, in fact, apply to me.

(And it really bugs me because I couldn't care less if you use person-first language or not. This is me, not caring. But do I get the same respect and consideration about my language choices, when I promise you I've thought more deeply about it than they have? No, no I do not.)

Tomorrow maybe I'll feel bad for being snippy towards this person, but honestly: STOP telling people to use person-first language! It's really not God's gift to human discourse.
conuly: (werewolf theothernight)
that Arthur just had a show on Asperger's!

George meets a rabbit with Asperger's, and after a few rather pathetic comments about "the piece of the puzzle" the show goes on.

Read more... )

There's also a "Word From Us Kids" that was edited from that episode, despite it being otherwise complete. You can see that clip at the end of the video here.
conuly: (werewolf theothernight)
somebody else is bound to pipe up "OMG! Use person first language!"

And I'm sure I've shared my opinion of person first language with you, but to recap:

It's counterproductive and, ironically, stigmatizing.
It's insulting in its very premise. (If you need to speak funny to remember that people are people, the language isn't the problem.)
With regards to autism, it's just plain silly. (How is changing my brain or yours going to keep us the same person? Absurd!)
Anyway, there probably are better things to worry about.

The last is why I rarely say anything. Honestly, silly though I find PFL to be, I don't really care. If you prefer to use it, go for it. If it can apply to you, and you want me to use it, I'll try to remember when talking to or about you. (But not about me. There, I draw the line. I think that's fair.) So long as you're being polite and respectful and understanding, I don't particularly care what words you use. I'm not going to play language cop unless you're really being offensive, in which case I'll either point out that that word is inappropriate (if you probably don't realize) or yell at you for having no manners (if you probably do).

However, if you pipe into somebody else's discussion a sanctimonious little comment about how They Are People, then all bets are off, because that's just really annoying.

Here is an editorial about a woman whose autistic child stopped speaking at two.

The language used within the editorial is pretty offensive, I'm thinking, so I'm tucking it behind a cut: )

So, dozens of comments down the line, the whole conversation has dissolved into "OMG! VACCINES!", I've left two comments or so on the subject, and here's one person who feels it's oh-so-necessary to point out "they are children* first, not a disability".

But, you know, none of the OTHER rude things said concern her at all! Talk about missing the forest for the trees!

(Also, you don't have to read the comments (and you probably don't want to, it's all same-old, same-old, very boring), but you could be a big help by commenting that you're an autistic adult, especially if you happen to be in your 50s or older. Some people are saying quite certainly that you simply don't happen to exist at all!)

*Yeah, I know. See my parenthetical.
conuly: image of Elisa Mazda (Gargoyles) - "Watcher of the City" (watcher of the city)
First, apparently the Theater Development Fund is running special Broadway performances for autistic children and adults (they said that specifically, with that wording) and their families.

It sounds like a really great program.

Now, you'll notice that in the list of organizations they thank, a prominent one isn't mentioned. YOU know which one. But I wouldn't expect them to be, first because this isn't really AS's thing, and second because, you know, they're evil. Or maybe they were deliberately excluded, a sign of good taste if you ask me.

And in the more awful news, here's a video of a bus driver and an aide beating up on an autistic student. They've been convicted but not sentenced. Why people who hate kids or just aren't good with them go into professions where they have to interact with children, I don't know.

DO NOT READ THE COMMENTS.

Half of them are "oh, that boy was violent, what do you expect them to do, he shouldn't be on the bus if his parents can't teach him to behave" and the other half are "oh, those terrible fatties from the ghetto should be shot". It's a sad day when both sides are obnoxious.
conuly: (brain)
your life is just events in between telling other people that Autism Speaks is evil? (EEEEEEEEVIL!)

On that note, I found a very nice article the other day about the family of an autistic boy who just won a case against the school district for denying their child services - and all of the dozen and a half comments were supportive of the family! One or two mentioned school districts wasting money... by not doing what they were supposed to in the first place and dragging out long court cases they knew they were going to lose!

I'm sorry I lost the link, but it was a very pleasant surprise. The comments were actually worth reading!
conuly: "I'm not a puzzle, I'm a person" (puzzle xiggy)
Could places like Silicon Valley be breeding a whole generation of kids with autism or Asperger's syndrome?

Because I distinctly remember talking this subject to death only about five years ago. And, uh, three years before that as well. And last year, maybe?

And yet, the comments (don't read the comments) are acting like this is a wildly new proposition, and as it is SOOOOOOO new they are deeply, deeply suspicious of it. (Especially because it doesn't mention vaccines at all, but that's all right, lots of people are willing to promulgate equally absurd non-vaccine hypotheses as well. Maybe people have too much sex! Maybe they use too many birth control pills! Maybe it's artificial sweeteners! Wait - could it be vaccines??? Or some sort of hormonal imbalance that I'm making up right now?

And there's always the eugenicists....

(Do NOT read the comments!)

As far as inheriting autism goes, I've said it before, but to recap:

I'm pretty sure both parents were/are what's called "the broader autistic phenotype". One day I have to explain how I grew up, our whole family functioning as a little self-contained unit that didn't particularly want or need anybody else. (This was actually a great way to grow up, but by my teens I could see that other people didn't live quite like that!) And I'm pretty sure both grandmothers were/are as well. And we ALL know my mother's father was autistic, that's not even a possibility that he wasn't.

Now, my mother swears that she knew about me from the time I was a baby. And I believe her - I remember being dragged around to doctors as they tried to get me diagnosed, to no avail. (Apparently, bright children who could talk just didn't get autism diagnoses back then. Remember this the next time somebody points to their bright, verbal child and says "This child is autistic because of vaccines, it's an EPIDEMIC!" Very often when people do, I reflect that the kid is no different than I was at that age.)

At the same time, when I started researching the subject (after I admitted it to her), she didn't want to talk about it for a while. She thought I outgrew it or it "wasn't that bad" or whatnot. How she could hold both views simultaneously I do NOT know, but there it is.

She's gotten better about it, and recently she randomly brought up that a friend had said that if I wasn't "so aspie" she'd think Jenn was on the spectrum. (I don't see it myself, but possibly for the same reason my mother... wait, I'll get to it.) And that brought up the whole issue, again, of who in the family might be anywhere near the spectrum at all, and my mother, at the end, scoffed "C'mon! If that's all your criteria, half the world must be autistic!"

And I think I finally figured out the issue here, and I pointed it out to her - if my idea is correct, and there's a heck of a lot of it floating around in her family and the people she's chosen to associate with (including, y'know, her husband my FATHER) - she doesn't know what normal is. She thinks her family is the epitome of normal, but you know, her cousin Frances thought Schlomo was a normal name! (And it is to some people, just like we're all normal to my mom.)

That's a tangent, but it's a bit more interesting I think than the link, which, y'know... isn't really news.
conuly: (werewolf theothernight)
but apparently not, as this editorial on a business that hires autistics deliberately is only a few days old.

Weird how that happens. Nothing really new here, it's not saintly to hire disabled individuals - heck, it's probably the law where you are, if not to seek out disabled people to hire to at least not discriminate against them and to give reasonable accommodations.
conuly: "I'm not a puzzle, I'm a person" (puzzle xiggy)
Behind the cut is a list of companies that give to Autism Speaks. If you have any information on OTHER companies, pass it to me and I'll pass it to the person I got this from.

Read more... )

The ThinkGeek situation has a happy update!

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